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Dear Pari, India’s first narrative podcast on adoption hosted by parents Rakesh and Priya, will take the listeners through their journey of adopting their daughter while discussing pertinent issues. Parents, adoptees, government officials, anti-trafficking experts on child adoption are part of this series. This series is brought to you by Suno India, a podcast platform for issues that matter. Subscribe on www.sunoindia.in

New draft policy for people with rare diseases a let down

Recently, the Ministry of Health released a draft policy on rare disease. The policy mentions providing a one-time financial assistance of 15 lakhs to patients with rare disease. It is seen as a major let down from the previous draft in 2017 which mentioned a 100 crore corpus with both state and central governments providing assistance to the corpus for an estimate 70 million people living with rare diseases. To discuss this and more, ahead of the rare disease day, Suno India Editor Padma Priya spoke with Host of our rare disease podcast 1 in 20000.

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Avantika Shrivastava

New draft policy for people with rare diseases a let down