Persons with disabilities make up over 2 per cent of the Indian population. While not all persons with disabilities are rare individuals, rare diseases are chronic and can lead to major disability. Both – rare individuals and persons with disabilities – have needs that are different from the larger population.
From lifesaving medicines not reaching people due to the country-wide lockdown to lack of proper knowledge on how they can prevent the Coronavirus infection, this episode features difficult experiences. It focuses on the interview of Smitha Sadasivan, a disability rights advocate and a person with a rare illness called Multiple Sclerosis. She talks about the Indian public system proving fragile in the pandemic, and the consequent impact of this on rare individuals.