Persons with disabilities make up over 2 per cent of the Indian population. While not all persons with disabilities are rare individuals, rare diseases are chronic and can lead to major disability. Both – rare individuals and persons with disabilities – have needs that are different from the larger population.
From lifesaving medicines not reaching people due to the country-wide lockdown to lack of proper knowledge on how they can prevent the Coronavirus infection, this episode features difficult experiences. It focuses on the interview of Smitha Sadasivan, a disability rights advocate and a person with a rare illness called Multiple Sclerosis. She talks about the Indian public system proving fragile in the pandemic, and the consequent impact of this on rare individuals.
This season has been made possible from a grant by the Thakur Family Foundation.